January
23, 2007
Presenting: Marie Perrotta from the Pegasus
Community Project – Reaching for the Stars
One person I had heard a lot about from different sources while
searching for interview candidates about Toronto’s
Beach neighbourhood is Marie Perrotta, the Founding Director
of the Pegasus Community Project for Adults with Special Needs.
This non-profit charitable organization provides daytime opportunities
for adults with developmental challenges, family support and community
outreach. Pegasus also runs a thrift store whose revenues support
the operational funding needs of this organization and provide practical
work experiences for program participants.
Just before 10 am this morning I went to meet Marie at the Beaches
Community Centre which is the location for one of her program groups.
A few minutes before Marie’s arrival I had a chance to sit
down for a few minutes with Gillian Story who is now a full-time
program counsellor with the program. Gillian explained that the
Pegasus program consists of three groups of adults with special
needs that meet at three different locations: the Beaches Community
Centre, Centre 55 and the Matty Eckler
Community Centre, all in Toronto’s east end. Since graduating
with a degree in music and psychology at Concordia Gillian started
working at Pegasus in October of 2006 and admits it was a big learning
experience at first. But she says that the staff and the participants
in the program have been extremely welcoming and made it easy for
her to fit in.
Marie Perrotta in the Pegasus Thrift Store
As Marie arrived and took off her coat to get ready for an interview,
one program participant, a 24-year old woman named Shannon sat down
beside me. The group was very cheerful and demonstrated a very natural
sense of curiosity. A couple of the participants had peppered me
with questions as to who I was, why I was here and what I was planning
to do, and I briefly explained my interview plans. Shannon mentioned
that she works at the Pegasus Thrift Store twice a week and volunteers
there on Saturdays as well. She operates the cash register and welcomes
the customers. Marie confirmed that Shannon has a great talent working
with people and referred to her as a “natural social worker”.
On Mondays Shannon goes to Variety Village, a fitness and life skills
facility in Toronto’s east end, where she and her friends
from Pegasus enjoy swimming, weight-lifting and other physical activities.
Shannon was very gregarious and outgoing and inquired whether they
might be a possibility to see her later at the Pegasus Thrift Store.
I did not want to let Marie wait any longer, so I thanked Shannon
for talking with me, and Marie and I relocated in order to be able
to do a quiet interview. Marie is originally from Buffalo, and she
and her husband moved to Ontario to complete their graduate degrees
here. After her undergraduate degree in French literature she completed
her graduate studies in assessment counseling at the Institute of
Child Studies at the University of Toronto. Her work background
prior to her involvement with Pegasus includes psychiatric research
at the Hospital for Sick Children.
Marie with two Pegasus participants
One of Canada’s attributes that captured Marie right from
the start was people’s openness, the country’s civility,
diversity and tolerance. Marie noticed these characteristics right
away and added that tolerance is underrated. In her words, if you
spend enough time with people who are different, with time you’ll
get over those differences. I wholeheartedly agreed with her and
we concluded that often it is lack of exposure to people of different
backgrounds that creates negative stereotypes.
Marie has three children: Andrew, 34, an adult with developmental
challenges, Olivia, who just graduated from international development
and science at McGill University in Montreal, and Cristina, who
at 17 years of age is still attending high school. As the mother
of a child with a developmental disability Marie understands the
unique pressures of families dealing with developmental challenges.
In 1993 Marie found out that adult children with developmental handicaps
would not have access to day programs after the age of 21. About
650 people in Toronto were on waiting lists for existing day programs
and Marie knew she had to do something.
Marie got several parents together that were in similar situations,
but the group did not last long. She called on government funding
agencies and approached the Matty Eckler Community Centre, part
of the Toronto Parks and Recreation Department. The representatives
at the community centre reacted extremely positively and offered
Marie some space for her intended day-time program. Once she had
secured the location, she formally set up a charitable organization
and put together a board of directors which included another parent
with a developmentally challenged child, as well as three other
board members, including a teacher, a child daycare administrator
and an occupational therapist.
From January to September of 1994 the team raised $30,000. Alison
Masters, one of the Board members, held a big auction and a party
at Lido’s Restaurant. With
another fundraising event and a small grant from the city the program
was ready to start. One of the earliest exercises was to find a
name for the organization, and Marie came up with the idea to draw
on Greek mythology. In the spring of 1994 they had set a goal to
get the organization launched by the fall, so she decided to pick
a fall sky constellation and came up with the name Pegasus. The
organization indeed got its start in September of 1994. Today many
other names of heavenly objects are used in the fundraising efforts
of the organization: The “Galaxy of Stars” lists donors
in different categories including “Hercules”, “Perseus”,
“Cygnus” and “Lyra”. Another group of donors
is referred to as the “Meteors”.
The Pegasus Thrift Store at 970 ½ Kingston Road
Over the years funding has come from many different sources. For
ten years Marie ran an annual yard sale from her front yard and
as the handling and storage of donated goods became too onerous,
fundraising efforts have now shifted to the “Pegasus Thrift
Store”, located at 970 ½ Kingston Road. The store is
an interesting project because not only does it provide significant
funding for Pegasus, it also offers practical training and work
opportunities for many of the participants in the Pegasus program.
Until 2000 Marie ran the program out of her house and recalls that
acquainting herself with the necessary computer skills initially
presented a challenge. In the beginning, when her daughter was only
4 years old, Marie had trained her to take telephone messages. So
one day a call from the Association of Community Living came in
and Cristina politely asked the caller to spell out the name of
the association. When Marie had a look at the message Cristina took,
she saw a big note, all scribbled out across the whole sheet of
paper in a 4 year old's handwriting, but with a perfectly proper
spelling of the organization’s long name.
Today, the Pegasus Community project receives significant funding
from the Ontario Ministry of Community and Social Services, and
a program fee has been implemented. Marie indicated that the government
support has been tremendously helpful in light of the enormous financial
and psychological strain on families with a person who is suffering
from developmental handicaps, which include such disabilities as
Down’s Syndrome, autism, certain cases of cerebral palsy and
others. Marie added that many cases of developmental handicaps do
not have an exact diagnosis.
The program is very staff intensive: the ratio of staff members
to program participants is 1 to 2.5. Some of the participants require
care to meet their physical needs. Staff also look after some medical
needs, such as seizure monitoring, giving medications, and feeding
through a G-tube. All of the staff members and volunteers in the
program receive the requisite training to be able to provide proper
care to the participants. Marie indicates that today virtually all
of her staff members have two or more years of post-secondary education
and many have university degrees and related experience.
Beautiful greeting cards, adorned with feathers
The Pegasus Community Program today has 38 participants located
in three community centres. Two types of programs serve the participants:
the Aquarius Program offers long term support while the Pegasus
Program is a transitional program which focuses on skills development
and vocational experiences.
Marie strongly believes in a decentralized approach since it allows
for greater integration into and acceptance by the community. Other
facilities often house the same or an even greater number of participants
in one location, but often these locations are in industrial areas,
isolated from residential communities.
Marie is a strong proponent of community integration, and she feels
that virtually every human being, including people with developmental
disabilities, have the capability to give back to the community.
The Pegasus participants volunteer at the Thrift Store, they also
take on unpaid volunteer work assignments in the local community
at stores such as Price Chopper and Zellers, and they volunteer
to deliver a local community newspaper, the Beach Metro News.
Viewed from the perspective of a person with disabilities, community
interaction and integration is absolutely critical. Every human
being needs a change of scenery as well as mental and sensory stimulation.
One day when her son was not able to attend the Pegasus program,
he was sitting in the kitchen, sadly staring at the door. Although
he was not able to vocalize his feelings, Marie recognized very
clearly that he deeply missed being able to go out and join his
friends at the program. She added that when you work with people
with disabilities you get very good at paying attention to decoding
non-verbal communication.
Volunteers are an absolutely critical element in Pegasus’
success. Marie refers to some of her regular volunteers who come
out to work with the participants: Margaret Simmons, a retired principal,
comes in regularly to provide a literacy program while Selma Smith
has been teaching an arts and crafts program for five years. The
projects of the “studio program” are quite sophisticated
and the artistic products are sold at the Thrift Store as well as
by local retailers in the Beach such as Arts on Queen.
Nutritious and delicious soup and cookie mixes
Three students from the Behavioural Technology Program at George
Brown College are currently completing internships with the program
while six nurses from Centennial and Humber College are completing
practical community nursing placements for their Bachelor of Science
Degrees. A high school student named Kelly, from a community program
at Inglenook High school is also currently volunteering with the
program.
The Beach community has widely supported the program, and the participants
regularly venture out into the community in different excursions.
Today as I was there, several people arrived with shopping bags
full of groceries, and collectively the group prepared a delicious
and nutritious lunch that included chicken wraps and sweet potato
fries. Marie also indicated that fitness and physical activities
are an important component of the program. Participants regular
go to Variety Village to go swimming and play team sports such as
soccer and basketball. Marie added that there are quite a few gifted
athletes in her groups.
Some of the participants have fewer support needs than others,
and with several years of assistance and support they may even move
on to holding paid jobs in the community. The young lady Shannon
who I was talking to earlier was a good example of this and she
has successfully and enthusiastically been working at the Thrift
Store. Marie believes in all sorts of possibilities for her participants
and the program provides job coaching for the participants who have
the potential for gainful employment. Other practical skills such
as learning how to take public transit are also taught in the program.
Marie adds that this type of training does take years, but it is
an important investment in individuals and the community as a whole.
Currently Marie is working on organizing a fourth group which will
be run out of SH Armstrong Community Centre just a bit west of the
Beach neighbourhood near Coxwell. Marie firmly believes that the
decentralized approach is critical for the success of her program
since it provides for greater community interaction and acceptance.
She adds, maybe a future successor of hers might make changes to
that approach, but for now she is happy that she now has a program
manager who is very familiar with the program's philosophy. She
is relieved that even if she were not around, the program would
continue.
Shannon, a program participant, works and volunteers at the Thrift
Store
Running a registered charity comes with all sorts of challenges,
including a wide range of administrative duties as well as quarterly
financial reports and budgets. Marie indicates that although Pegasus
is a small organization you have to deal with the same organizational
issues as in a large organization. But once you get it under your
belt it becomes much more manageable.
Several merchants and organizations also support the Pegasus Community
Project. Residents in the Beach have welcomed the program and Marie
adds that Beachers are more broad-minded and charitable than they
are sometimes given credit for. Some people have even thanked her
for bringing developmentally challenged individuals into the Beach.
Just recently one individual wrote a $500 cheque to the project,
and he was so happy to do so as if he had just been waiting to be
asked to write that cheque. The generosity from so many people is
outstanding, and Marie really appreciates all the support she has
received.
One organization that has been particularly helpful is the Toronto
Beach Rotary Club which supports Pegasus with regular fundraising
initiatives. Local merchant Harold Wisefeld, also known as Zoltzz,
the owner of the famous fashion discount store Ends in
the Beach, has been a very generous contributor to Pegasus. Another
local entrepreneur, Dan MacLeod from the Price Chopper supermarket
at Gerrard and Victoria Park, is extremely committed to community
work.
Marie says he has opened his store’s doors to hire many people
with disabilities. He will even assign regular employees to work
alongside a person with a disability, to train them and help them.
One of Pegasus’ participants, a young man named AJ, works
at Price Chopper three days a week and needs coaching while he is
there. Dan sees to it that he receives the support he needs. Dan
also supports many of Pegasus’ special events as well as other
organizations such as the Cancer Society and the Alzheimers Society.
Very few merchants would go to these lengths to accommodate and
support people with disabilities.
The newest merchandise: hand-made tote bags, made by the participants
After having concluded our one-on-one interview we checked in on
the Phoenix group next door which in the meantime had prepared lunch
and was enjoying a good meal around the table. After a few photos
I said goodbye to the group, thanked them for their time and interest
and invited them to join me for my Photo Exhibition in the Beach
which will be held in early March. Fortunately the location will
be within walking distance and the members of the group will be
able to drop by and have a look at the photos.
Marie and I then drove five minutes up to Kingston Road where Marie
showed me the Pegasus Thrift Store. The store is open on most days,
but it is better to call ahead to make sure that the store is staffed.
The Thrift Store sells everything from used books, CDs, fabric,
clothing, dishes and glassware to small electric appliances and
even Barbie dolls. It provides a great opportunity for Pegasus program
participants to gain practical work experience and support the fundraising
efforts for their program. Friends and neighbours donate all the
second-hand goods that are sold in the store.
For me the highlight of the store are the products that are made
by the Pegasus program participants themselves. Marie demonstrated
a range of hand-made products to me:
- handmade greeting cards featuring feathers and a variety of artistic
techniques
- bookmarks reminiscent of beaded necklaces
- soup mixes including recipes
- various types of cookie mixes
- the most recent addition to the merchandise: a handmade tote bag
made from donated fabric
The program participants at the Beaches Recreational Centre
In addition to her regular duties Marie works in the store virtually
every Saturday and hopes to be able to find some help in organizing
it soon. She added that initially her plans were only to cover the
costs of the rent and telephone, but the Pegasus Thrift Store has
morphed into much more than that: a major fundraising tool as well
as a great place of learning for her program participants. Many
shoppers say it's one of the most fun places to shop at in the Beach.
I also asked Marie whether her organization has a website yet and
she indicated not yet. But she is currently working with two volunteers
to develop one.
Meeting Marie Perrotta was one of those humbling moments when you
get to know someone who has overcome significant personal hurdles
and truly dedicated her life to people in need in the community.
Several awards recognize these efforts: Pegasus won the 1995 City
of Toronto Access Award and the 1998 Innovation Award. Marie herself
was honoured as the 2004 Beach Citizen of the Year, following the
footsteps of other prominent Beachers such as Gene
Domagala (who is also a regular volunteer for Pegasus), Glenn
Cochrane and Arie Nerman.
As I walked away from the store I thought the heavenly analogies
of the Pegasus Project are quite fitting: to her program participants
Marie must be like an angel, sent down to earth to help them reach
for the stars.
For more information about the Pegasus Community Project
or to make a donation please contact Marie Perrotta at
416-691-5651. To contact the store regarding shopping or dropping
off donations, please call 416-913-2544.
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